Patient Advocacy

Neuroendocrine Cancer UK (formerly NET Patient Foundation) is a UK wide charity with a purpose to provide local support and information to patients and families from diagnosis, enabling access to the best care and treatment, whilst stimulating Neuroendocrine Cancer research, increasing national awareness and influencing improvements in outcomes. 

NCUK has information on its website, and organises regular patient information meetings and local ‘NET Natter’ groups. They also have a library of information, including a “Guide to Living with NETs”. If you would like to order any information for your clinic, please contact Neuroendocrine Cancer UK.



  1. Association for Multiple Endocrine Neoplasia Disorders.


Neuroendocrine Cancer UK

Neuroendocrine Cancer UK (formerly the NET Patient Foundation Society) aims to promote research, education, training and best clinical practice across a multidisciplinary area in the field of neuroendocrine tumours.

Visit Neuroendocrine Cancer UK


International Neuroendocrine Cancer Alliance.

Visit INCA