NCUK & UKI NETS Practice Changing Grants

Advancing Neuroendocrine Cancer Research

NCUK’s new campaign, Advancing Neuroendocrine Cancer Research, aims to raise more funds for Neuroendocrine Cancer research to support those with the condition both today and in the future.

NCUK & UKINETS are now able to offer three strands of research funding and opportunity.

NCUK & UKINETS Pump-priming grant – Applications now open

We are pleased to announce the 2023 round of the NCUK & UKINETS pump-priming grant in support of neuroendocrine cancer (NC) research.

The aim of this grant is to provide pump-priming funds to support research projects designed to improve outcomes for patients with neuroendocrine cancer.

Application criteria for pump-priming grant

All projects must fulfil the following criteria and will be judged against this:

  • Proposals from researchers in all relevant fields of NC research in the UK & Ireland.
  • Research projects must improve outcomes for patients with neuroendocrine cancer.
  • Potential to lead to more substantive funding.
  • A robust outcome measurement.
  • Ambitious proposals that encourage collaboration between centres are encouraged.
  • The funds are to be used to cover research costs but not travel expenses, salaries or major equipment. This grant is not to be utilised as part of a bigger research programme.


One grant of up to £30,000 will be awarded.

For more information, and to apply, please click here…


NCUK & UKINETS Surgical Speciality Lead

As part of NCUK’s  ‘Advancing Neuroendocrine Cancer Research’ campaign, we are delighted to announce the appointment of a neuroendocrine cancer Surgical Specialty Lead (SSL). This is the first time such a role has been established specifically for neuroendocrine cancer, in partnership with the Royal College of Surgeons. There are currently only 22 SSLs in the UK so this appointment represents an opportunity to advance both research and awareness within the wider surgical community.

We are thrilled to introduce Mr. Samuel Ford, a consultant Upper GI and sarcoma surgeon specialising in neuroendocrine tumour (NET) surgery, as the neuroendocrine cancer SSL. Mr. Ford also serves as the research committee chair of UKINETS.

The primary objectives of the SSL role, spanning a 3-year term, include establishing two new trials, training approximately 30 new investigators, and developing clinical networks.

The primary goals of Mr Ford’s research will focus on understanding the value of surgery in advanced neuroendocrine tumours (NETs) which is unknown. NETs are typically slow growing and when advanced, people can live a relatively long time. Surgery might prolong survival and improve quality of life; however, it comes with the risks of undergoing a major operation and could expose patients to harm with little benefit. Patient groups and NET specialists are united in the value of answering this question although it is uncertain if patients would be willing to be randomised (allocated by chance) to surgery or not. This trial is to assess feasibility of recruitment and true acceptability to patients.

In his own words, Mr. Ford stated,

I am absolutely delighted to have been appointed as the Surgical Speciality Lead for Neuroendocrine Cancers. I recognise that this is considerable investment for Neuroendocrine Cancer UK and I am very grateful for the tireless fund raising and support that has come from o





Practice-changing grants, a collaboration between NCUK & UKINETS – Applications now closed

To help patients today, NCUK are launching these practice-changing grants in collaboration with UKINETS to help people with neuroendocrine cancer.

The aim is to support healthcare professionals to find new and practical ways to help improve the lives of people with neuroendocrine cancer with rapid implementation (within 12 months).

These grants are open to any healthcare professional. NCUK will fund a maximum of 3 grants of up to £10,000 each per year.

Please email Lisa at [email protected] if you have any questions about the grants.



The two 2023 Practice Changing Grants were awarded to:

1. A Pilot Model of Group Education for nutrition/dietary advice and symptom management in NEN.

Dr Alia Munir, Royal Hallamshire Hospital, Sheffield


2. Evaluation of the impact of QoL of a NET specific pathway for patients, utilizing the MyMarsden patient app, together with integration with Advanced Nurse Practitioner let NET clinics.

Drs Charlotte Fribbens & Daniel Morganstein, The Royal Marsden Hospital



Poster prizes: 1st Dominique Clement, 2nd Matthew Stanley, 3rd Kalyan Vamshi Vemulapalli

Best oral presentation: Harry Green