Advancing Neuroendocrine Cancer Research
NCUK’s new campaign, Advancing Neuroendocrine Cancer Research, aims to raise more funds for Neuroendocrine Cancer research to support those with the condition both today and in the future.
NCUK & UKINETS are now able to offer three strands of research funding and opportunity.
NCUK & UKINETS Pump-priming grant – we are please to announce the winners of the these grants, awarded at the UKINETS Conference in Cardiff on 2nd December 2024
Prof Krista Rombouts for:
Role of Tumour Microenvironment in SI-NETs: full characterisation of an innovative human-derived 3D ECM SI-NET model and proof of concept study
Dr Melissa Frizziero for:
Feasibility of cell-free DNA methylation profiling for minimally invasive cancer detection and classification in patients with well-differentiated neuroendocrine tumours
NCUK & UKINETS Surgical Speciality Lead
As part of NCUK’s ‘Advancing Neuroendocrine Cancer Research’ campaign, we are delighted to announce the appointment of a neuroendocrine cancer Surgical Specialty Lead (SSL). This is the first time such a role has been established specifically for neuroendocrine cancer, in partnership with the Royal College of Surgeons. There are currently only 22 SSLs in the UK so this appointment represents an opportunity to advance both research and awareness within the wider surgical community.
We are thrilled to introduce Mr. Samuel Ford, a consultant Upper GI and sarcoma surgeon specialising in neuroendocrine tumour (NET) surgery, as the neuroendocrine cancer SSL. Mr. Ford also serves as the research committee chair of UKINETS.
The primary objectives of the SSL role, spanning a 3-year term, include establishing two new trials, training approximately 30 new investigators, and developing clinical networks.
The primary goals of Mr Ford’s research will focus on understanding the value of surgery in advanced neuroendocrine tumours (NETs) which is unknown. NETs are typically slow growing and when advanced, people can live a relatively long time. Surgery might prolong survival and improve quality of life; however, it comes with the risks of undergoing a major operation and could expose patients to harm with little benefit. Patient groups and NET specialists are united in the value of answering this question although it is uncertain if patients would be willing to be randomised (allocated by chance) to surgery or not. This trial is to assess feasibility of recruitment and true acceptability to patients.
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In his own words, Mr. Ford stated,
“I am absolutely delighted to have been appointed as the Surgical Speciality Lead for Neuroendocrine Cancers. I recognise that this is considerable investment for Neuroendocrine Cancer UK and I am very grateful for the tireless fund raising and support that has come from o
Practice-changing grants, a collaboration between NCUK & UKINETS – Applications now closed
To help patients today, NCUK are launching these practice-changing grants in collaboration with UKINETS to help people with neuroendocrine cancer.
The aim is to support healthcare professionals to find new and practical ways to help improve the lives of people with neuroendocrine cancer with rapid implementation (within 12 months).
These grants are open to any healthcare professional. NCUK will fund a maximum of 3 grants of up to £10,000 each per year.
Please email Lisa at [email protected] if you have any questions about the grants.
The two 2023 Practice Changing Grants were awarded to:
1. A Pilot Model of Group Education for nutrition/dietary advice and symptom management in NEN.
Dr Alia Munir, Royal Hallamshire Hospital, Sheffield
2. Evaluation of the impact of QoL of a NET specific pathway for patients, utilizing the MyMarsden patient app, together with integration with Advanced Nurse Practitioner let NET clinics.
Drs Charlotte Fribbens & Daniel Morganstein, The Royal Marsden Hospital
Poster prizes: 1st Dominique Clement, 2nd Matthew Stanley, 3rd Kalyan Vamshi Vemulapalli
Best oral presentation: Harry Green