We are excited to announce the launch of the Neuroendocrine Cancer Priority Setting Partnership (PSP), led by the UK and Ireland Neuroendocrine Tumour Society (UKI NETS) and Neuroendocrine Cancer UK in collaboration with the James Lind Alliance (JLA).
This initiative is aimed at gathering insights from patients, caregivers, and healthcare professionals to help identify and prioritize the most critical research areas in neuroendocrine cancer. Your voice is essential in ensuring that the research agenda aligns with the needs and experiences of the neuroendocrine cancer community.
As part of this effort, we kindly invite you to complete a short online survey to share your perspectives. The survey covers key topics related to the challenges and opportunities in neuroendocrine cancer care and research. Your participation will directly influence future research priorities and help improve the lives of those affected by this rare and complex cancer.
How to participate:
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Click the link below or scan the QR code to access the survey:
https://www.surveymonkey.com/r/93885SM
- Complete the survey – it should take no more than 10 minutes.
The consultation phase of the PSP launched on 1 December 2025 and will run until mid-February. Your feedback is invaluable to us, and we truly appreciate your time and input. If you have any questions or need assistance, please don’t hesitate to reach out to us at [email protected].
Thank you for helping us make a difference.

