There have now been 7 meetings with NHS England GDO ( Get Data Out) service.
We have been trying to classify all NEN so that the GDO service can publish annual incidence and survival data on the GDO website which will be visible to all. Classifying NEN has not been an easy task, but with the help of many members of UKINETS and the National Disease Registration Service ( NDRS) we are nearly there. The hope is the website will go live in spring 2026. This may be a first for a complete set of data for a single country. This is for England only but we are in touch with offices in the devolved nations to plan a UK-wide approach.