News from the NET Patient Foundation


Patient Education Events

We hold Patient Education Events across the UK, which are open to anyone affected by Neuroendocrine Cancer (NETs and NECs). These events are in collaboration with specialist NET teams to provide an opportunity to learn more about NETs, as well as a chance to meet others in a similar situation. 

Our Patient Education Events are well attended, well evaluated and very interactive.

In October we held a meeting with the team from Kings Healthcare Partners ENETs Centre of Excellence, topics discussed included the longer term consequences of a NET diagnosis and nutritional support. Our Q&A session, supported by members of the NET MDT, covered all aspects of living with NET, from decision making about current treatments to emotional support and the future of NET care.

We are in the process of arranging our programme for 2019 – which currently includes plans for events in Manchester and the South West, with a session on psychosocial support agreed for the Birmingham team’s event in May.

Healthcare Professionals

We also participate in educational events for healthcare professionals and are frequently asked to present at teaching sessions, conferences and education programmes. 

In November one of our nurses will be speaking at a healthcare professionals event in Newcastle and in December we will be presenting at a regional GP education event.

Raising awareness and disseminating evidence-based information is key to improving practice, improving quality of life and prognosis for NET patients and encouraging current and future research.

Neuroendocrinologists of the Future

This NET Cancer Day we have asked patients to help raise awareness of NETs at 14 medical schools around the UK with the aim to reach out to the Neuroendocrinologists of the future. 

Patients and volunteers will be sharing their story and raising awareness of NETs to medics and aspiring new medical students with the additional aim of creating an interest in those medics that may wish to take a career path in the speciality of NETs. These events will be taking place throughout the whole of November.

Oxford Patient Conference and Ball

On NET Cancer Day, NPF in collaboration with Oxford University Foundation Trust and NET Natter Oxford Support Group are holding a day of information, education and support for all those affected by NETs. Click here for more information. 

The conference will be followed by a Black and White Ball at the Oxford Belfry.

NPF Coffee Morning 

This NET Cancer Day we’re asking everyone to hold a coffee morning to help raise awareness of Neuroendocrine Cancer and help us to continue providing community support to anyone affected by NETs. 

Sign up to the NPF Coffee Morning by clicking here and we will send you a free fundraising pack filled with everything you need to help raise awareness on the day.