NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in England using English cancer registry data, with an aim to also access Scottish, Welsh and Northern Irish cancer registry data to also get UK wide statistics. The work has been carried out with reference to a working group comprised of UKINETS members. The English data will also be used for statistics on diagnostic and treatment referral pathways, the occurrence of multiple primaries in people with NETs, and the occurrence and treatment of carcinoid heart disease in England.
These data were presented at the UKINETS National Conference in December 2017.
The abstracts can be found below:
- The Incidence and Prevalence of Neuroendocrine Tumours in England.
- The 1- year survival rates for Neuroendocrine tumour patients in England.
- Metachronus primary cancers in Neuroendocrine tumour patients.
- Neuroendocrine Tumour patients experiences of support in the community setting across the treatment trajectory.