Patient Advocacy

The NET Patient Foundation is the only charity in the UK offering support to people affected by neuroendocrine cancers throughout the country, and funding research into the care and management of NET cancer patients.

The Foundation has information and a forum on its website, and organises regular patient information meetings and local ‘NET Natter’ groups. They also have a library of information, and are working on a “Guide to Living with NETs” which will be available soon. If you would like to order any information for your clinic, please contact NET Patient Foundation.

Contact NPF


Association for Multiple Endocrine Neoplasia Disorders.



The NET Patient Foundation Society (NPF) aims to promote research, education, training and best clinical practice across a multidisciplinary area in the field of neuroendocrine tumours.

Visit NPF


International Neuroendocrine Cancer Alliance.

Visit INCA